Two Years Since Diagnosis

I wrote the following poem, back in 2019. This was two years after I had been diagnosed with Young Onset Parkinson’s Disease. Now, in October 2021, and wide awake at 4.30am having had no sleep at all overnight, it is interesting to read back and see what my experience was two years after diagnosis. Perhaps I will need to write a new poem, now we are another two years further on?

Here is the poem, written by me back in 2019:

Two years Since Diagnosis.

Change happening in innumerable ways.
Medication doses segmenting my days.
Navigating life in a bit of a daze.
Two years since my diagnosis.

Pioneer of my destiny and prepared.
To do what I can even when I feel scared.
With heartfelt gratitude for those who have cared.
Two years since my diagnosis.

Sleep’s allure is lost to me forever more.
Incredulity as more things seem a chore.
The slam of my body as I hit the floor.
Two years since my diagnosis.

I completed a course to change my career.
‘Take the bull by the horns’; removes any fear.
My life as a therapist, I have held dear.
Two years since my diagnosis.

Adversity reveals its face unto me.
The shackles from which I seek my liberty.
Revealing my symptoms in speech therapy.
Two years since my diagnosis.

The human condition needs a connection.
Failing on this would be an insurrection.
I have achieved a new social direction.
Two years since my diagnosis.

Prescriptions reveal the true state of decline.
Long gone are the days when I’d say “I feel fine.”
Like being branded at that moment in time.
Two years since my diagnosis.

I am transitioning to be a writer.
I’m not giving up; I remain a fighter.
But this new career makes my future brighter.
Two years since my diagnosis.

The throes of progression across many years.
This heretic presence disrupts through dark fears.
The truculent gremlin grimaces and sneers.
Two years since my diagnosis.

Online I made friends, with Parkinson’s Disease.
We designed a support group for those in need.
For my sense of purpose this planted a seed.
Two years since my diagnosis.

I do not walk this rutted road on my own.
My spouse, too, has seeds of purpose that he’s sown.
It’s clear that out of tribulation, we’ve grown.
Two years since my diagnosis.

(c) Deano Parsons. 2019.



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