When I first walked into a waiting room for my first post diagnosis meeting with my neurologist, I was struck by one thing. Very elderly, grey haired people. Nobody looked like me. Everyone was easily in their eighties and they were of grey hair, wizened faces and I simply stood out ‘like a sore thumb’.
Where were the people with Young Onset Parkinson’s Disease? Why was I being seen in a clinic entitled ‘Elderly Care’ and was I really meant to be there?
I felt like an outsider. This has been the feeling I have had when attending clinics, ever since.
I created a painting to depict this moment; this feeling. I painted using acrylics on canvas.
The painting also depicts how, in 2021, I’ve been told that the neurologist’s case-load is now too full, with end of life patients, to be able to keep a ‘young’ patient on the case-load. I have been referred to ‘General Neurology’, as a result.
This, I was told, was due to a shortage of Parkinson’s specialist neurologists and nurses, due to Brexit.
Here is the painting. Let me know what you think, in the comments below.